New Booklets Available!

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Shwachman-Diamond America is pleased to announce that we have a new booklet available.  The title is Management of the Hematologic Abnormalities of Shwachman-Diamond Syndrome by Richard Harris, M.D.   This booklet is excellent for parents, pediatricians and specialists.  If you would like a copy (or copies) of the booklet sent to you, please send your mailing address to shwachmandiamondamerica@gmail.com    These booklets are FREE to anyone who requests them.  

The booklet includes sections on the following topics:

  • Description
  • History
  • Diagnosis
  • Management of Neutropenia
  • Management of Fevers in SDS patients
  • Antibiotic coverage prior to Dental Work or Surgical Procedures
  • Management of other Cytopenias
  • Management of Anemia during Surgical Procedures
  • Management of MDS
  • Management of Leukemia
  • Bone Marrow Transplantation for SDS  
And also includes the following:
  • K-M Survival Plots
  • Important Contacts
  • References
  • Glossary
All of us at Shwachman-Diamond America would like to take this opportunity to thank Dr. Harris for all of his hard work and dedication to this project.  Thank you, Dr. Harris, from the bottom of our hearts!  Your dedication to all of our SDS and SDS-like children is appreciated more than you will ever know.