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The North American Shwachman-Diamond Syndrome Registry is now enrolling patients. They hope to have a website up and running SOON. If you are interested in joining the Shwachman-Diamond Syndrome Registry, please contact Melissa Alvendia at 206-667-6965, toll free 866-792-5876 or by email: malvendi@fhcrc.org
For more information, please see the Shwachman-Diamond Syndrome Registry Brochure
